Although there is a few of us with Sjogren's here, I don't think there's enough for a board/group.

I'd be happy to answer any questions you have.

I am also a patient at the Sjogren's Center at Hopkins. Look over the different parts of the link MrsD attached carefully. There are very specific requirements just to get accepted to make an appt there...and the waiting list can be long.

Here's another link with more detailed info about the process to get in and what specialties are part of the Center.

http://www.hopkinsmedicine.org/rheum...ns-center.html

Have you had the initial testing SSA & SSB? What about a lip biopsy?