Lidocaine infusions in general are just not as effective as ketamine and can be very risky. I had a severe reaction during one infusion and my throat almost closed up. Each infusion caused my BP to increase to the point that my head felt like it was going to explode. The relief I got was welcome but didn't last that long.
Ketamine, for me, is an amazing solution to my pain. I receive very low doses - only 200 mg each -and have minimal side effects. There are still some side effects, such as terrible nausea and migraines, for which I take meds. But I am so much better that they are worth it. Ketamine has allowed me to return to work on a FT basis since June 2010.
I recommend that you visit the Ketamine Klub FB page and check it out. Many real nice people are on there that will be able to give you lots of support in regards to Infusions for your daughter. Good luck!! I will keep her in my prayers!
P.S - Have you tried any of the PT programs for children yet? Dr. sherry at Children's Hospital of Pennsylvania in Philly is reputed to be one of the best. There is also a good Children's Hospital in Waltham, Mass.
Sandy
Quote:
Originally Posted by accox4
Thank you, Sandy. My daughter is only 13, so I'm thinking it would be best to start with the Lidocaine, then we can work up to the Ketamine if we need to. However, I don't want to put her through it if the Lidocaine doesn't give good relief. She has not had relief from nerve blocks; she has had 5 out of the series of 6, each providing only a few days relief of decreased pain, but the pain was still there. She is so fed up with getting poked and injections, trying this and trying that, with nothing working. I just hate to put her through it if it won't be enough.
Why did you switch from the Lidocaine to the Ketamine? Did the first rounds of Lidocaine work and then stop working?
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