Hi J, Yes I was also diagnosed with MS in 2001 but the neuro told me I had probably had it for 25 years already. One neuro told me I had the Progressive/Relapsing type and I was on Avonex for 9 months before my immune system crashed.

In April of 2011 I was hospitalized for what we thought a relapse and given 3 days of solumedrol. The doctor (hospitalist) ran some blood tests that had never been done before and the Acth antibodiy test came back positive for MG.

In June I had 5 days of IVIG, then 3 days for July, August, September, October, and one day in November before the neuro discontinued it. I go back next week to find out why he did that. I am also trying to take the generic of mestinon which is supposed to be 4 tablets a day but because of the diarrhea I can only take 2. I also take the Mestinon Time Span 180 mg at night.

At least we know we are not alone.

Gabriella