Hi Gabriella....thank you for your reply! It is good to hear from others who are in the same boat (so to speak..lol).

I take the generic during the day as well 3 X 60mg. Tonight I will start the timespan at bedtime. I can see that getting the dosage right on the Mestinon is going to be the tricky part.

I have to say that I am a little tense about the reports that I read on people having a MG crisis. In the past I have felt a little short of breath at times (which I told my Dr.), but now if it happens, I start worrying and then anxiety makes it worse. So I am training myself to try to put that out of my mind.

I do live in a small rural town though, so I think I had better alert our local Physicians Assistant and the EMT's to my new diagnosis. At least they would know what was going on without having to start at zero.

And yes, it is nice to know we are not alone!!!
Jen