Hey everyone - doing really bad today so its gonna be abit of a sloppy post probably. I tried to clean up after the x-mas influx - ughh!

When my pain reaches 5ish my arms begin to get very, very cold. My neuro has explained that it is a pn reaction to pain and is a reduciton in the circulation. He did not explain why my arms do this. He is very smart and well known in his feild and loves to hear my sympptoms. Because my condition is so umcommen to last so long(ganglioneuritis) he gets really excited when I describe my symptoms and we tend to focus on what my symptoms are, but not much how many different ways to help (he really focuses on meds - he invents cancer meds).

What I would like to know is what other pner's go through - do you experience this? What do you do for it? Is ther eanything topical, internal, ANYTHING i have missed.

I do use a moist heating pad and it does help, but only a little and only so long as my arms are kept under hte heat. That is the only thing I have found that helps. Even the pain meds don't help this phenomena. My hands are ALWAYS cold t othe touch, and ICEY if my pain is over a 5 (about 30% of the time this time of the year).

Thaks i would love to hear what is out there - I tried a search but I couldn't think of the correct words to use so it didn'y come out very well - to many meds I guess right now - .