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Originally Posted by adelina
 Hey everyone - doing really bad today so its gonna be abit of a sloppy post probably. I tried to clean up after the x-mas influx - ughh!
When my pain reaches 5ish my arms begin to get very, very cold. My neuro has explained that it is a pn reaction to pain and is a reduciton in the circulation. He did not explain why my arms do this. He is very smart and well known in his feild and loves to hear my sympptoms. Because my condition is so umcommen to last so long(ganglioneuritis) he gets really excited when I describe my symptoms and we tend to focus on what my symptoms are, but not much how many different ways to help (he really focuses on meds - he invents cancer meds).
What I would like to know is what other pner's go through - do you experience this? What do you do for it? Is ther eanything topical, internal, ANYTHING i have missed.
I do use a moist heating pad and it does help, but only a little and only so long as my arms are kept under hte heat. That is the only thing I have found that helps. Even the pain meds don't help this phenomena. My hands are ALWAYS cold t othe touch, and ICEY if my pain is over a 5 (about 30% of the time this time of the year).
Thaks i would love to hear what is out there - I tried a search but I couldn't think of the correct words to use so it didn'y come out very well - to many meds I guess right now -  . |
The only things that work for me are walking or a nap. For some reason it has a vasodilatory effect, opening up the circulation to the ends of my fingers and toes. It happens very quickly and works almost every time. The challenge is sometimes my feet/hands are so cold I can't get to sleep.
I've also noticed a few times in the past when I'm about to fall asleep and there's a transition to the autonomic nervous system, my sense of temperature can drop a lot very quickly.
Dr. Majid Ali, a chronic fatigue expert, says he teaches his patients with cold hands/feet a trick which opens their arteries. In a very short time it raises the temperature, he says, from 80 to 90F. He calls it "autoreg." I'm trying to find out his technique so I can warm up while I'm still awake. It sounds quite clever because it requires no meds.
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Every week, I spend about three hours in my autoregulation laboratory teaching my patients how to flush their cold hands and feet with warm blood by allowing their arteries to open up by shutting out the thinking mind. I do not recall a single laboratory session in which one or more patients did not see their skin temperature shoot up from below 80 degrees to 90 degrees or over. Clearly, this is an autonomic function. (The term autoregulation actually derives from my early work in this area, when I used to call it autonomic regulation. My patients shortened it to autoregulation, then to autoreg.) Equally clearly, such a rise in skin temperature cannot be attributed to thyroid manipulation because no thyroid hormone is used in such work. Furthermore, temperature regulation through thyroid hormone therapy takes several days or weeks, whereas I observe changes in the skin temperature in minutes.
http://www.majidali.com/temperat.htm
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I'm trying to boost my mitochondria to generate more heat. (I took my temp today and it was only 96.1F.) Ali says a drop of less than that from 98.6 is serious:
"Even a small drop in body temperature, such as three-quarters to one degree, can significantly impair enzyme efficiency, sometimes causing as much as a 50% drop."
P.S. Dr. Ali seems to expound on his temp control/autoreg methods here:
http://www.majidali.com/ghoraa.htm