Thanks Annie and MrsD. Cait is doing so much better now that she's on Cellcept and mestinon (doc gave her permission to take the mestinon every 4 hours around the clock if she needed it). Maybe the IVIg has kicked in too (started first dose 12 days ago). She's 100% stronger. Now we just need to maintain. I contacted a local support group and we hope to learn more from the members.

I am looking forward to the drug interaction list that is being prepared. That will be helpful to all of us. The pharmacist gave us a list of drugs not to use, but it didn't have benadryl listed (no antihistamines were on the list) so the "official" lists published by the pharmaceutical companies is not sufficient.

Sarah