Sorry you are having so much frustration rj!

I am seeing a psychologist, also working the CBT as much as I can. It helps.

Your Dr may not be willing (insurance reasons?) or able to tell you the severity of your TOS. It seems like this condition is still being studied, so most Dr.'s aren't really up to speed on the latest findings. I do think it's noteworthy that the National Pain Foundation has given TOS it's own section - not lumped in with many other serious conditions.