Ok, this is "my" area -- LOL!! Well, not funny -- but, I'm "Bulbar".

Can you still whistle? Smile -- does it look "normal" or sort of like a "snarl"? Look at yourself in the mirror WHEN you swallow. Can you SEE your throat REALLY making an effort to move when the food/drink is going down? Have you ever had liquids "float" back up into your nose after taking a drink -- sort of like water gets into your nose sometimes when you swim? Does your voice ever get "slurry" -- like a drunk or stroke victim? Do your lips get sort of "numb" feeling -- but actually, they just aren't moving very well -- and you can't "purse" them -- like you can't form a KISS or pucker? Use your tongue to feel the insides of your cheeks (I learned this from an oral surgeon). Can you feel ridges/lines -- especially close to your mouth? This indicates shortened muscle fibers.

Personally, I don't give a "hoot" if the doctor you are seeing is a neuro-muscular specialist or not. SOOOOOO sorry to say this. I think that something like 85% of MG symptoms start out as OCULAR -- and that is what some of the "neuro-gods" are looking for. I'm NOT saying that you HAVE MG -- I'm NOT a doc. BUT, if my paragraph "rings a bell", then, if I were you..............I'd get a SECOND OPINON -- SOON!! Cause Bulbar MGers are the MOST likely to go into respiratory distress -- i.e. the ones that end up in the hospital on a vent.

BTW, I was initially told that I had EITHER had a stroke OR had a brain tumor. I had done some research and was pretty sure that I had MG -- I think that they ran the blood tests just to shut me up. Actually, I LIKE the doc that diagnosed me -- I don't blame him. He was just doing what he had been taught. I like to think that we BOTH have learned from my "weirdness".

Oh, and I'm pretty sure my RNS and EMG were normal (run about 5 years after diagnosis for a different reason) -- but, my bloodwork was positive -- all THREE times -- three DIFFERENT labs!!