Quote:
Originally Posted by ShelbyG
Hi! My name is Shelby. I am 38 and have had RSD/CRPS for 8-9 years. I am on day 5 of a 7 day spinal stimulator trial, which for me, has worked amazingly well. I came across a post earlier where someone said one the trial was over, the pain returned almost immediately. Is that true? Not that I really expected it to "go away" but I was hoping for more of a break in between. I've been told my permanent surgery will not be for 2-3 weeks. I honestly only first heard of the stimulator a month ago when I went to a new doctor in town on my own (this is a work comp issue - and that's a whole other story) and have "survived" somehow on stellate ganglion nerve blocks, radiofrequency ablasions and numerous meds.
Any advice, thoughts, suggestions would be greatly appreciated!
Thank you!
Shelby
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Welcome Shelby!
So sorry you are joining our "club" but you have come to the right place to educate yourself which will make you a better self advocate.
Unfortunately, radiofrequency ablasions and spinal cord stimulators are two of the most risk producing procedures you can undergo with CRPS. Please put a hold on your permanent SCS implantation until you thoroughly educate yourself and conduct your own independent research. Once permanent damage and spread is caused by SCS it cannot be reversed.
Please consider other more state of the art and non-invasive treatment prior to undergoing a Spinal Cord Stimulator.
If you physician is unfamiliar with other treatment options, consider a second or even third opinion.