Quote:
Originally Posted by ballerina
Welcome Shelby!
So sorry you are joining our "club" but you have come to the right place to educate yourself which will make you a better self advocate.
Unfortunately, radiofrequency ablasions and spinal cord stimulators are two of the most risk producing procedures you can undergo with CRPS. Please put a hold on your permanent SCS implantation until you thoroughly educate yourself and conduct your own independent research. Once permanent damage and spread is caused by SCS it cannot be reversed.
Please consider other more state of the art and non-invasive treatment prior to undergoing a Spinal Cord Stimulator.
If you physician is unfamiliar with other treatment options, consider a second or even third opinion.
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What else is out there? I've been to 3 different pain specialists, at least 10 different pt/ot, done the nerve blocks which give minimal relief and as of today am on 13 different medications. I really questioned doing the SCS but I personally have had such great results already that I can only imagine they would improve with a permanent implant that isn't moving around. My pain level is consistently at least an 8/10. My RSD/CRPS is in my left hand and arm, luckily not my dominate arm, but I cannot button, tie, shave with that hand, blowdry my hair, straighten it, open a package, nothing. Did no one else have any positive results with the SCS?