Originally Posted by LouiP

Hi,

I am new around here, and would appreciate any incite onto my ongoing ordeal. Since March of 2011, I have been ill with a mysterious problem that no doctor, other than "Lyme Specialists," have been able to put a finger on. I have been diagnosed with chronic lyme disease, but have a hard time accepting that as my problem.

After doing hours of research online and reading posts from various boards, ACM 1 sounds like my problem. In my heart, I feel like that's whats causing all my problems.

I have probably a list of 30 symptoms I could share here, but I am sure you guys have heard them all before, and perhaps I will share them if you guys want to know.

The top 3,

Insomnia
Back of heard pressure-constant 24/7. Sometimes it gets worse, but its always a 2-4 on pain scale.
brain fog
POTS
Neck cannot hold up head

Anyway, This all seemingly came out of nowhere. Its been going on for 8 months and I am so tired of being in constant pain.

I am a 22 year old male. Was seen at Stanford for 6 months without them being able to tell me anything other than, I am depressed... that's a little obvious.

The Neurologist at Stanford does not agree that i have Chiari, but there is a noted 4-5 mm herniation, or falling of my cerebellar tonsils.

I have my mri images, and want to go to the Wisconsin Chiari Center.

However, I was wondering if anyone here could possibly take a look at my MRI images and see if I am just wasting my time looking for Chiari?

I just want to be normal again, know the feeling?

Thanks all,

I appreciate it.

Louis