Hi Mandy,

I don't have any insights into your condition, but just one thing to offer. If Barrow's doesn't work out, you might try Dr. Kumaraswamy Sivakumar at the Neuromuscular Research Center in Scottsdale. Although I didn't get answers for myself from either Dr. Sivakumar OR Barrow's, at least Dr. Sivakumar was very kind and understanding, put a LOT of thought into my case, and ran several tests for several conditions. Barrow's didn't even do an EMG. Also, once my referral to Dr. S was approved, I got in to see him within a week. I also think Dr. S is intrigued by puzzles and difficult cases, and I got his name from a well-respected pediatric neurologist who said Dr. S is his go-to man for opinions on difficult cases. The only thing is that he is a neuromuscular specialist, so MG is right up his alley but I don't know about the MS

I hope your experience with Barrows will be more satisfactory and you won't need this suggestion.

Tatia in Peoria