Infusion went well so did appt-this is what I learned

There is a range for the jcv test. Some are definately at the top and some at the bottom while others more in the middle of + or -, guess that's me since I was + 2010. - 2011. He is considering plus for the purpose of pml odds. At 48 months and being jcv+ the odds are 1/700. There aren't enough people on the med over 48 mths to give me more accurate odds and these odds are worldwide.

I learned a bit about anti-lingo phase I trial. When I said I guess there is no hope for axon regeneration-he said might be. This work being done with myelin could prove to help both. Early stages-I'm all for hoping and praying! there is also the trials/work being done with stem cells!

Linda