Hi my name is Angie. I just recently had the Chairi Malformation type I Decompression surgery 11/10/11, and am now having more complications with the disease than I had before the surgery. I feel the doctor werent listening to me, and never gave me an MRI after my surgery. I switching doctors, whos ordering up an MRI for me finally... but Im so scared about the thought of another surgery to fix the leak causing the build up of spinal fluid, if thats what is has to come down to.

Any have any ray or hope on this situation?

Im so scared and feel so alone in this even tho my mom and boyfriend have been by my side the whole ride.

feel free to email me....