Quote:
Originally Posted by catra121
Perhaps what your husband needs now is to be referred to a pain management specialist to address his current pain. They would probably be in a better position to diagnose a condition like RSD because it is not something that would generally fall under the orthopedic specialty. A neurologist is another good option, especially if RSD is suspected.
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I agree completely. The fact that the surgeon has never heard of CRPS (and wasn't interested in researching it)
is not a good sign. In fact, it is a big red flag. The fact that the opposite hand that was NOT operated on is swollen and deformed is the smoking gun that something is really amiss here. And CRP levels.....yes they measure inflammation, but don't do anything to help understand
root cause.
Your husband really needs another opinion and I agree that a pain management doctor or a neurologist that specializes in CRPS (not even all neurologists really understand CRPS) should see him.
What you are experiencing is what MANY of us have already gone through. Many doctors just do NOT understand CRPS. Don't get sucked into their black hole of ignorance and denial by not wanting to get another opinion! You must take control of this situation. Don't feel afraid that you are going to hurt the feelings of the surgeon by getting another opinion; it's YOUR lives. It took me 5 doctors and a physical therapist before I got a solid diagnosis!