It took me 7 years to receive a diagnosis, from my first neuro ophthalmology visit in my hometown to my evaluation at Mayo. I had been having symptoms for about 6 months before I was sent to the neuro-op. Don't let that be too discouraging, though. I would hope that I'm an exception to the rule.

The most important thing is to advocate for yourself. It also seemed to help me when I started bringing my spouse with me to appointments. He was able to validate the weird symptoms that I had been experiencing.

Let us know how things go. And feel free to PM me if you'd like.
Cate