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Old 01-05-2012, 08:59 PM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Hi, I guess I'll do an update on my IVIG, too. I just had two out of three days, and, well, I haven't ended up on the floor today, for the first time in a couple of weeks. So I think I'm stronger already. I have a headache in spite of pre-medicating (ibuprofen), hydrating, hydrating and hydrating, and having them run it slow (75 ml/hour = 4 hours). But the headache is relatively mild.

I'm wondering whether it's normal to get so many failed sticks, or if I just have bad veins or bad IV nurses. Tomorrow I'm going to warm up my arms on the way over (with microwaved rice-filled cushions). Also, it's my regular nurse's day off, so I get the talented one right away, instead of having to wait until the less-talented one racks up her "three strikes."

If this course of IVIG helps me as much as the last one did, the plan is that I'm going to get a one-day booster as soon as symptoms start to return, instead of waiting until I'm really weak. I have high hopes for this new plan, since last time my symptoms returned gradually.

For anyone reading this who hasn't had IVIG, I want to repeat that this is my third course. My first course didn't kick in for more than a week and then only lasted for three weeks. But my second course kicked in almost right away and lasted six weeks.

Abby
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