Thread: Thymus Tumor
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Old 01-06-2012, 05:49 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Angela, Don't be overly positive! They didn't run the MuSK antibody and some MG patients do not have either AChR or MuSK antibodies, known as "seronegative" MG. You could still have MG but it is manageable if you do. No, it's not fun but can adjust to it.

If they gave you iodine contrast and you have MG, it can make MG worse. Try to take it easy today and for the next couple of days. If you have MG it doesn't just get worse right after an activity (or a drug like iodine) but you can be worse for the next couple of days.

If you get really weak, please go to the hospital. It doesn't matter if you have a diagnosis or not, if you have MG and it gets to the point of not being able to swallow, breathe or move well (generalized weakness), then you need to be in the ER.

I hope you get answers soon. Bring up the MuSK test to your docs. Take care of yourself!

Annie
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