Hi I am so sorry. I can understand the fear you are going through. When I first developed the pain and symptoms I was 28 and the doctors had no clue what was going on. Finally since my pain and symptoms were so bad I was refered to a neurologist and the dx testing began. I had a wait too but I called everyday for a cancelation. I have gotten into many apts early doing that. I suggest you do that.
How is your support system at home? I hope you can get help with your kids and emotionally for you. Also if you want an email buddy I am here. I wish I could offer more. Hang in there