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Old 01-07-2012, 03:38 PM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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Unfortunately...I cannot help with finding doctors in your area because I do not live in your area. But I hope someone chimes in soon with some recommendations. That said...I am so sorry to hear what you have been going through and I am sad to say that your story is fairly common for those of us who suffer from RSD.

My RSD is the result of a work accident too...so I know that dealing with WC is a frustrating and normally not a very rewarding experience. It is important to not let the stress of this take over your life because it will only make RSD worse. I know...eaiser said than done...but please keep your focus on your health and getting the treatment you need to get better and let the lawyer deal with WC. That said...you cannot just sit around and wait for things to shake out on that front.

What other symptoms do you have aside from the pain, sleeplessness, and depression? Does your leg get ice cold or really hot to the touch for no apparent reason? Have you noticed changes in color, hair growth, or the nails on your affected limb? Does it swell up really big for no reason? Not everyone with RSD has all of the symptoms, so absence of some doesn't mean it is not RSD, but they can be critical to the diagnosis of RSD. Also important...there is NO TEST that can confirm a diagnosis of RSD...it is a clinical diagnosis based on your symptoms. Things like bone scans or sympathetic blocks can be useful tools to help diagnose...but not everyone with RSD will show abnormal results on a bone scan and not everyone with RSD gets relief from blocks. The only way to diagnose RSD is if you have the symtoms (there are 4 categories I think and you should have at least one in 3-4 of them...you've already mentioned two in your original post). If a doctor claims that there is a test that can tell you 100% that you HAVE RSD then they are misinformed. You can rule out RSD by having test results that show it is something else causing your symptoms...but it cannot be diagnosed because everything else has come up negative either.

That said...you NEED to find a new doctor. I don't know the WC laws in your state...but your lawyer should be able to go before a judge and ensure that you are not prevented from seeing another doctor. If your state only allows you to see so many doctors and for only those medical expenses to be covered, then maybe you need to consider (though discuss this in detail with your lawyer before doing anything) using your own health insurance to see another doctor who specializes in RSD. Realize that there is no guarantee that you will ever get reimbursed by WC for your OOP costs...but at least you may be able to get the medical care you need before it is too late for many treatments to be successful. Your health needs to come first and that needs to be YOUR priority. If this is in fact RSD then there is no cure and your best shot at remission is to get treatment as quickly as possible. It's easy to get caught up in saying they SHOULD pay for it...but if you sit around and wait for that to happen then you may be too late to get treatments that would have helped you if you had gotten them sooner. Do not mess around with this...get the medical care you need so that you can get your life back (hopefully) and then your WC case can be dealt with by your lawyer. Discuss all of this with your lawyer of course, as he may have some legal remedies that could speed up the process of getting WC to do what they should, but make it clear that you cannot wait months or years to get the treatment you need. Health needs to be your number 1 priority.

Good luck to you. If you have any other questions about RSD or even if you just need to vent, please post them. There are so many good people on this board with a variety of experiences and opinions. I don't know where i would be right now if I had not found this place.
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"Thanks for this!" says:
justwantanswers (01-07-2012)