Sometimes a cerebrospinal fluid leak can happen when Tarlov
cysts are removed. This is supposed to correct itself, but maybe in your daughter's case this is not happening.
A cardinal sign of a CSF leak is headache, and relief in the prone position.
If you Google "Tarlov cyst and CSF leak" you can find several links that explain this.
We have a CSF forum here:
http://neurotalk.psychcentral.com/forum78.html
And this is our Tarlov cyst forum..
http://neurotalk.psychcentral.com/forum73.html
It is not very busy, but you might find some information there.
Keep protesting at the doctors'. Sometimes you just have to be insistent, or get another opinion.
Good luck to you.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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