Yes, Tracy, you are going downhill. You need to see your neuro right away. You mentioned in the other post about a "tight chest" and that's a warning sign of worsening too.

Do you have a pulmonologist who can assess your breathing?

The amount of acetylcholine (ACh) in the body is reduced by an enzyme called acetylcholinesterase (AChE). Mestinon helps inhibit that enzyme so that we can keep our ACh in our neuromuscular junction longer.

Heat and cold increase AChE and, therefore, decrease the available ACh. Everyone is different but heat and cold affect MG and can make you weaker.

I don't like how you're describing your chest wall muscles (in the other post). If you can't breathe well, you have to go in to urgent care, the ER or your doctor. If it's really bad, where you can't take a breath in or out well, you need to go to the ER.

I hope you can get some better treatments to help you feel better. Take it easy.

Annie