NeuroTalk Support Groups - View Single Post - New Member-Looking for some answers

new2net98 · 01-07-2012, 08:15 PM

[FONT="Arial"][/FONT]Hi there, I'm Stacy. Always been a kind of laid-back person. Lived on the knowledge that stress was something that bothered other people.

I'm a control-freak. Not the kind of control-freak that HAS to be in control of others; but the type that has to be in control of myself. I expect alot from myself, at all times. I love to give to others...be it my time or my experiences; if others seek information...I give it. Unconditionally. Always have & always will.

Now, I'm in control of nothing, and I don't understand why.

My body seems to have a mind of it's own & on the other hand, it seems to have shut down. I never know...from the time I wake up (when I sleep) to the time I go to bed, what symptoms will appear; what their duration will be, or how to cope with them.

The list:

This time it started with numbness & tingling...then progressed to an "itchy" feeling around the left side of my face; up the nostril on the left side of my nose & the back of my left ear. I also get a "mask" feeling on my face (when the Neurontin I am now taking) wears off.

I have balance issues, tingling & numbness in both feet, my left arm has a "band-like" grip on the upper arm, just below where the arm connects to the shoulder. Swallowing issues...like I am about to choke. Drooling sometimes or the sensation of drooling from the corners of my mouth.

November 2010 I nearly lost my job when the memory problems I had affected my job. Also, I had had a few tremors in my left arm & it scared me. I went to my (then) PCP & was basically told that...you guessed it...it was all in my head. So I dropped him & went to another doctor. I had been going there for seven years. I think I might have been in that office only three times in seven years. Gee, thanks doc.

All through 2011, until August, I tried to ignore what was going on. My family was adamant that I go see someone about it. So when a Bellin Health Center office opened locally, I became a new patient. I have been refered to a Neurologist and had a Brain MRI, bloodwork, Evoked Potentials, a spine MRI & a follow-up brain MRI. The Neuro wants to do a Lumbar Puncture, however, I was hospitalized as an 11 year old with horrible headaches, and had one then & am terrified of having another one.

Never thought I was going to be in this position of not knowing what's going on with my own body.

All I am looking for is support, answers to questions & help in finding a specialist in my area, who accepts MI BC/BS, who is well versed in possible MS & Chiari. Yep, and maybe a friend or two...or a small miracle of relief of this stuff.

Thank you for listening to me "type" my frustrations!