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Old 03-28-2007, 03:18 PM
burckle burckle is offline
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Join Date: Aug 2006
Location: Pearl River, New York
Posts: 153
15 yr Member
burckle burckle is offline
Member
 
Join Date: Aug 2006
Location: Pearl River, New York
Posts: 153
15 yr Member
Default New org for pders

Another way to get around the high cost of medication is to volunteer for PD trials. My medication cost me nothing and I have one of the best PD doctors in the country. Even the parking is free. It's all because I volunteered for trials. I realize that this is not open to everyone but the roster of trial volunteers should be larger than it is. I understand that the state of Connecticut has 10,000 PD patients but only 500 on trials.

The patients that I feel for are those who live in rural regions or in small towns where services are marginal and fellow-PDers are far apart. Why not have somthing like Meals-on-Wheels where instead of delivering meals, companionship, conversation, a game of scrabble are offered?

I live just outside of New York City where there are many support groups and they meet weekly. Toward the end of summer I'll be moving to Maine where support groups meet once a week. Then I will know what it's like to be isolated

All the best,

Lloyd
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