Quote:
Originally Posted by nigel ep3 05
The strange thing is that after my acl and medial cartilage surgery, I did have intense 'hot coin' feeling on the inside of my knee where I have 1 stitch and almost cried when they removed it with. All the other 13 around the knee where totally fine with only a little pinch.
However as time passed my operation healed fine and was back to full activity, running, bike, gym etc without any pain whatsoever until 20 months after the op. Wouldn't go skiing but you get the point. It did heal slightly tight but never bothered me to be honest.
The pain started 13 months ago after I over strained the knee and spent 2 months not letting it settle down by continuing normal daily activity however did not have constant pain, only pain from walking, fishing, driving too much or when keeping the leg straight too long. This was until a physio pulled my leg out several times which is what we believe caused my rsd as my pain then became constant and difficult to control but the funny thing was than when I kept it bent I had no pain at all. This is what mixes me up the most and still does! I was able to turn the pain on and off at the time and although the pain is way different now, the pain only allows for me to be seated with my thigh parallel to the floor and cant be in any other position or angle, otherwise I would get intenser pain.
I know crps is a monster but it would at least clear my mind to know what exactly was the initial cause of it and if it has to do with that spot from surgery and if so is it possible to fix or treat as opposed to the crps 
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From what you posted here, my best guess (and of course I am not a doctor and have no specific knowledge of the details of your case) is that the CRPS resulted from the knee strain. I know that with the amount of pain that we suffer it feels like it should be more than that...that something bigger must be causing this pain...but it is usually not the case. The logical part of our brains says that with pain this severe there should be an injury or damage to match...but often there isn't. It's bad enough knowing that I got this from a sprained ankle...something many people get in their lives that usually heals up just fine...but then I think about the people who may have done something as small as slam their finger in a drawer, stubbed their toe, had blood drawn for a simple test and I think of how much worse they must feel about how this could happen. It makes me feel a little better if I think of it more as my sympathetic nervous system was damaged when I was hurt.
With all the normal test results, it is no wonder that many of us feel we are going completely insane because the pain is so severe and yet the doctors can find nothing wrong so we get bounced around until someone diagnoses RSD and then it's like this great sense of relief that we are not insane because the pain is real (which we already know but sometimes the doctors can make you question your sanity).
I also want to assure you that it is not uncommon for the pain of RSD to progress over time after the initial injury. I was able to walk on my ankle and even though there was pain, it wasn't completely debilitating at first. But instead of the pain getting better...it just kept getting worse and worse. Physical therapy didn't help, vicadin didn't help, tylenol didn't help...it just kept getting worse and the docs just kept ignoring my complaints of intense pain and even the fact that my leg was getting ICE cold. I was put in a boot to immobilize and initially it seemed like that helped...but then the pain got even worse than before. This is classic CRPS...if you don't use it, you lose it. You can get it back usually with extensive PT...but the longer you allow yourself to immobilize the limb the more pain you will be in and the more pain you are in the more you want to immobilize to avoid further pain. It is a vicious cycle and based on your inability to move your leg much I would say that you are pretty far into that cycle. You need to realize that even though your pain is EXTREMELY severe and you can't move you leg much...this COULD be just the CRPS and there could be no other underlying problem. Not saying this is the case...but you should be aware that it very likely could be and don't convince yourself that just because the pain is so bad that there has to be something else going on.
I don't want to discourage you from trying out a treatment that you feel is worth the risk to you...just trying to give you things to think about. I know when I am thinking about different treatment options my brain is running a mile a minute and sometimes it helps to just think things through out loud (or type them out here as the case may be). Sometimes I will even just grab a pen and paper and write down all my thoughts so that I can get them in some sense of order...even just making a list of the pros and cons can be helpful.