Quote:
Originally Posted by Joanna81
It is, I've never met anyone with the same affliction. **. It is pretty rare.
Ugh... Well after my surgeon did my surgery on Friday he buggered off on holiday.
I had internal bleeding, so the drain kept filling, no one wanted to authorise it's removal as The drain was still draining and they were not my consultant. I needed a blood transfusion early on. I also had fluid around and/or on the lung,so that caused pain and extra difficulty breathing. After 8 or 9 days my surgeon returned and said he was surprised to see me still there  and said to remove the drain. (In amongst all that was the heamatoma(the bruise was crazy) and severe post op nausea.)
I had another chest xray the next day and was told I cOuld go home !!
I was doing ok then the next day I was having difficulty breathing and they were worried about clOts and infection, so went back in to my local hops( I had the surgery 45mins away as he wAs a specialist and had supposedly done the most surgeries in the country.) ended up on the chest ward with sick people!! It was traumatising. They had no clue about it and had never seen such a surgery I cannot count how many times I was asked why I had a rib removed. I Was there for 6 days had numerous x rays and ct scans till they heard from my surgeon who said all my side effects were normal due to the extent of the bruising and such.
I was so glad to come hOme it was awful. I have depression and anxiety issues already but I manage it all mostly by medicating with pot, which helps with those symptoms and the pain and nausea.
Also still take paracetamol, tramadol and now amitriptaline. Although I try to keep that to a minimum I much prefer the effects of cannabis, it isn't always enough by itself though.
Gosh, ill be impressed if you got through that. I have been thinking about seeking therapy or counselling to try and deal with it all. It has taken a toll on my relationship. I'll be glad when it's all ovEr. It is an intense experience.
There were various neglegancies I need to ensure don't happen again to try and minimise trauma to me.
Oh my gp is also thinkingof reffering me for physio which I think I need.
Take care   |
Wow.... pretty similar outcome re the breathing difficulties and nausea etc post op.
I should find out this week whether or not I have a place for a pain management course. I initially did CBT for 6 sessions and they then referred me to have an additional assessment with another therapist to see what self help group would suit me best. I would give it a go, if only to learn a few techniques to help refocus your mind when the body is hurting, or just to take the opportunity to release some tension in discussing your pain issues with a therapist instead of aiming towards your partner. I know how the constant mentioning ( which can't be helped ) takes its toll on intimate relationships. Use outsiders to vent and rant on about the aches etc. That's the good thing about this forum. When you hurt......log on.
I stay clear of pot purely due to the fact that I have worked so hard quitting smoking ( 3 years now). I think that being smoke free has also helped me with feeding my body more oxygen>>>>> better blood supply to my extremities...... I also suffer from Raynauds Syndrome. However I have noticed that I have upped my drinking alot more and I find that when I'm hurting I turned to a few glasses of red instead of meds......I guess that's another vice to kick now!
I'm seeing my neurologist today, a post op update. I'm definitely going to ask about physio, I'll let you know of the outcome.
How are you feeling now?
Take care, best wishes!!!!!