Member
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Join Date: Jun 2011
Location: NY
Posts: 141
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Member
Join Date: Jun 2011
Location: NY
Posts: 141
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Thanks for the info on the tests. I have pages of tests and those tests were never run. I will ask her when I call her with the coag studies next monday. I have been treated for severe dry eyes and have had dry mouth problems for years. I did not think SS could cause axonal nerve death that results in flaccid paralysis.
Sural nerve biopsy. She's also doing a muscle biopsy too but expects to find chronic changes only on that one. I am on coumadin, but will go back to lovenex (sp?) injections to have the biopsy. I wanted IVIG on the remote chance that I had Multifocal Motor Neuopathy, but the doc said my EMG and NCV tests were not diagnotic to MMN and to just ttreat me at this time was not safe.
MrsD, I'm going live like Oreo.....treat myself with more kindness. My Jakie is a huge black cat who thinks he is a big baby. Such a lovie, gives me kitty kisses, rolls over, grabs me to pet him. I sing to him. He's a big guy, all muscle about 15 pounds. He brings me so much joy.
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