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Member
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Join Date: May 2011
Location: England
Posts: 302
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Member
Join Date: May 2011
Location: England
Posts: 302
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I think how you present yourself can make a big difference.
I felt like because I didn't understand it and most other people didn't understand it and the actual incident which caused the injury didn't sound particularly serious, I had to be apologetic about my symptoms. I would tend to waffle, give a confusing list of symptoms and say things like "well I hit my head in March and since then things have been all weird". Looking back it's no wonder people didn't know what to make of it.
When I got more informed and familiar with this condition I also got more confident in expressing myself and the seriousness of what has happened, without feeling that I have to justify myself or apologise. I now just say "I have a brain injury". You won't find anyone who doesn't take it seriously if you tell them that.
It's also useful to have a speech prepared which succinctly and accurately describes your major symptoms. Devising a new explanation each time someone asks what your symptoms are is one of the most challenging cognitive tasks I have come across, which meant I didn't express myself well early on.
That said, there are people who have had every opportunity to understand, and don't seem to have made the effort. There are also a few friends, and one in particular, who have really come through for me. I consider this revelation of who really cares about me and who I shouldn't waste my time with to be a major silver lining to this whole experience.
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mTBI March 2011, spent around a year recovering.
Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy
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