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Old 01-10-2012, 05:20 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Unhappy

here are some older articles about lewy bodies and alphasynuclein. this forum is notoriously unfazed about research ; so knowledgeable that nothing fazes anyone; I am right there with you. But the fact that the number of lewy bodies is not in a comparable pattern with the quantity of lost neurons could end up in separation of the two events - cell death and lewy body formation.

could this lead to the need to change treatments in progress? Patients, -lotsof them-should be involved in decisions about research. not just a few handpicked altho they are smart and have much to offer - there are so many and much can be blogged or skyped.

we have waited and always do our homework. i'm going to mayo clinic in jacksonville to see what i can learn about individual medicine.

this finding seems significant but if scientists remain aloof it will be another bsed around issue. i don't understand and have many questions of continuing the emphasis on lewy bodies, particular the alpha synuclein - again because we don't know its' function.

sorry to be negative but only because i'm supposed to not be negative to others. i'm not really sorry because i am strugglng and want to be in on some criticial trial protocol decisions and decisions about what to research. To leave all such important choices to a few produces more fat cats than treatments/ to continue in the same manner fits the definition of insanity.

http://jnnp.bmj.com/content/77/5/585.abstract
jnnp.bmj.com/content/77/5/585.abstract

as u can see cognition, lewy bodies, dementia and gait and balance are survival tactics and it takes a long time to feel no pain from a fractured bone. we have to recognize where we are headed and do what we can to develop our own services.

How much does this study change anything?

exercise please!
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paula

"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 01-10-2012 at 05:39 PM.
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