Have you spoken to the patient assistance program? They seem to be working with people to find solutions.

In my case, they offered to give me the vial for a co-pay of $10.00 but it still didn't help me, since it's the co-insurance and deductible I have a problem with. Their giving me the drug only freed my insurance co. from having to pay for the drug, but I am still stuck with the huge bill for the first infusion every year, so I told them to save it for someone who truly will benefit from their assistance.

I am evidently not eligible for a reduced rate from the infusion center despite having been turned down by the state medicaid program, so I went on a payment plan with the hospital where I get my infusion. I'll be paying 10% of my monthly income from now on unless something changes.

It hurts, but it's worth it for me to make sure I stay where I am rather than going down the tube!

Please call your caseworker and let them know what is happening with your insurance. They can help.