Quote:
Originally Posted by 89danboy
It took me years to find a dr to treAt my pain. Now he can't practice til further notice.that was back in june 2011.still closed. I went to a pain mgnt office in eht nj. Where I live and put me on low dose percs & a couple 10 mgs methadone.and took away one pill every o
Month.I stayed with the methadone10mgs 2aday.only because of its half life.wouldn't have any wd from such a low dose. I'm sure it would happen with only 2/ 10 mg percocet.anyway here is a quick story to show u guys my problem. I'm an iron worker in ac nj.I had a fall in 08. Shattered heel . Comp fracture in my back.& severely broken wrist.it took me 12 months of rehab 4 days a week for. 4hours aday. Cause of the.3 injuries. Anyway I couldn't under stand why I had so much pain still.I was on alot of opiates when I went back to work.after a year of that my pain was so bad and I didn't get off the couch for 3 months.rsd took over every organ of my body. Took 16 drs and 3years later to finally see dr scwartzmann. Kettamine treatments outpatient 10 days.I lost 23 pounds in the 2 weeks from that kett. Injs.that was in august of 2011.now I'm waiting for my workers comp to see if they can pay for more.I paid them up in two this point but now I cant afford anymore.paid 8000, so far.I was on 30mgs x4 oxycodone. Methadone70 mgs aday .and duragesic patch the year I was working.my new pm is a nurse practioner and doesn't really understand rsd and is a *****. I saw dr gettson two weeks ago and I love the guy,what a great attitude.he knew everything about my disease.he said he gives 120mgs or more if methadone. to his patients and to find someone else til my disability Or workers comp judgement .and I can see him. On thus dose now I have no life.atleast befor I could do a couple things I could do once in awhile and not have the pain.any suggestions.I'm sure all of u know how hard it is to find the rite dr.I wish all of you the best and healthiest life possible.I know and feel what all of u r go n thru.I stayed off of meds for 8 months befor I was diagnosed with rsd and it was hell. Then I had my gull bladder and stones removed cause of the severe abdominal pain.I didn't know it wasted at the time. But it is a fact . That living with rsd on the rite medicine makes life so much better then being without it and in pain and depression all the time. Anyway . I love all of you and hope you have proper medical treatment.
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89danboy,
Wow, that's not the first time I have heard of a doctor in NJ losing is license to practice PM. That's really terrible for you I hope you are doing okay, I also live in NJ way up north, near Mountain Creek, the ski area. I don't know of any doctors in your area but I'm sure someone will hop on with some names. You stated that you are going to have additional ketamine with Dr. Schwatzman or Dr. Getson once your insurance comes through, maybe you can asked there offices for a referral. I know some doctors don't like to do that. It was very hard to me to change from my doctors in NYC. I only switched because it was a hard commute it's an hour and a half without any traffic and I really did not need to go all the way into NYC at this point. I tried on my own and it was impossible, I shouldn't say impossible but hard to find someone who knew anything about RSD. I finally asked my PM doctor in NY to help me and he did and my new PM doctor is great and does work closing with my doctors in NY so it worked out. But it was a little scary.
I wish you the best with the ketamine treatments. I have done ketamine 3 - 5 day in-patient in NYC and boosters with Dr. Schwartzman. It did a great job haulting the spread, lessened the migraines, helped with the pain and allowed me to get off 99% of all the meds. I was on. I did the protocol boosters and then a few more after that but haven't had a booster since Jan 08 and have been doing okay. Had to have a few epidurals for my back which just worked great and haven't even had an epidural it will be 2 years in April. So all in all I would say it was a success. You will read on here that many do boosters continuously. For me even though the ketamine definitly saved me we don't get along lets say. I get severe nausea during the treatments which ofcourse they treat but I still get horribly sick. I remember during one of my inpatients especially the first and second day when the drug is introduced to your body I really get sick. My husband asked for a bucket so I could p...... and she brought in one of those little pink things that look like a kidney bean and he said to her " she's going to need way more then this", it was just horrible. I really never had hallucinations maybe the first one but positive not the nightmares some have. Sorry for the rambling I haven't had any time to read or post in a while you are the first. My husband's mom is very, very sick with cancer and it's just been a nightmare. Today is the first day in months that I can stay home and catch up. I wish you the best keep the faith. This site has some really wonderful people who I'm sure will give you some great names of doctors.
Nice to meet you,
Gabbycakes