Mandy,

I have no idea what you have, but my advice is to find out who the best neuro is at the most prestigeous(sp?) university with a medical school that you can find nearish to you, then get in to see them.
I don't know where you are, so I can't be more specific, but San Fran, LA, perhaps Seattle, would be good places to try if you could manage it.

Doctors who do research, which is what you should find if you do this, are more curious and patient than a standard neuro, even an MS specialist. You may not even need an MS specialist, perhaps a different sub-specialty would be better, like a neuro-immunologist for example. Those are the kind of docs that you can only find at universities usually.

Since you mentioned foreign travel, you should also consult with a really good infectious disease specialist.


Best of luck, I hope they figure it out for you.

Goldie