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Old 03-29-2007, 04:50 AM
Bonnie1014 Bonnie1014 is offline
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Join Date: Mar 2007
Location: Minnesota
Posts: 8
15 yr Member
Bonnie1014 Bonnie1014 is offline
Junior Member
 
Join Date: Mar 2007
Location: Minnesota
Posts: 8
15 yr Member
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Thank you for your welcome!
I was assuming there would be a point to publishing these guidelines, as it applies to future treatment.

Yes, you are right...and here's the preverbial "but"
one of the physicians listed as a contributor to the article was sitting next to me at our dinner table one evening not too long ago. We had a wonderful talk about various treatments and how it is determined which patient receives which treatment. Much of it is physical, but there is some where the mental state is taken into consideration moreso than the physical state, like Prialt for example. This physician is an advocate for Ketamine treatments. They may write or contribute to an article, but if it's a compilation of several specialists they may not agree with 100% of what is listed in the paper, but do agree with a portion. This same physician is very much against the spinal cord stimulator. It doesn't mean he/she is wrong, it simply means that is their opinion.

I agree that it would make sense the physician would feel the way the article or paper was published in its entirety, but they may still treat with a treatment modality mentioned in the paper as not being as effective as they'd hoped. This physician is a HUGE advocate for Ketamine treatments. He/She just does not approve of the combination of certain medications.

Ketamine treatment is so very new. I feel it is too new for any issue to be black and white. It is again what the physician feels is best for the patient. My pain physician uses Ketamine treatments, but opted for Prialt for me.

It has been determined that the induced coma in Germany is effective for now, but there are no long term results as far as I know. Being the USA does not allow induced comas for an extended period of time for this purpose, we may never know. I hope this changes, but they do move slowly.

Dr. Anne Oaklander of Harvard (I believe) has been able to create CRPS within rats. This is HUGE. There have been breakthroughs as to who may be more prone to CRPS; people under a great deal of stress at the time of the trauma, the typical type A personality, and/or the possiblilty of a genetic predisposition to this disease. We have one member with 5-6 other close family members that have RSD. That is the largest number I've seen thus far, but we are seeing more and more within the family units.

Dr. Oaklander has made great strides in her CRPS/RSD studies. In finding what may cause CRPS it means they are that much closer to finding a cure or a way of stopping it. Remission is not a cure, simply a lessoning of symptoms. I think we'd all be thrilled with the latter if that was all that was available???

I do believe it has their attention and many may now be on the fence, so to speak, about various treatments. Again, Ketimine is too new to have any long term results. This is where may of the physicians are careful. It may have been out for a while, but it also depends on the studies done, where they were preformed and how it was administered.

With Prialt being even newer, more and more physicians are leery of attempting the trial as mentioned previously, the FDA has not approved specifically administration via certain methods, but if Medicare pays for it there should be some approval at the government level. Again, this is simply speculation on my end. After talking with someone who checked with other professionals across the country, it was determined the spinal injection was not the proper way to administer a trial. The infusion would have been more effective and accurate. The injection was effective, but requires a lower dosage and titrating up to a therapeutic level prior to introducing additional medications into the pump.

I hope this makes sense...lol. If not, email me and we can talk further...

Bonnie

Last edited by Bonnie1014; 03-29-2007 at 05:01 AM. Reason: Too many typos
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