My sister is returning to Duke after a year of non-treatment. She is going to see the head of the ALS Center. Last year she went for a single fiber test which turned out to be a very poor visit. She got discouraged and has not had treatment for a year. She is currently responding to Mestinon. Anyway she was telling me that her local doctor had diagnosed her with familial MG. Yesterday I was looking through some of my old Dr. reports and discovered my earlier doctor had diagnosed me with the same thing. He did not mention this to me. After a little reading I believe the treatments for this is the same as most other MG cases. However I have been pretty nonresponsive to all treatments except IVIG. Does anyone have any thoughts on this form of MG?
Mike