A quick update:

I went to see another neurologist today. One that was recommended by a person who has MG.

Within about 5 minutes of me rambling on about my symptoms, the neuro interrupted me and asked "have you been tested for something called Myesthenia Gravis?"

I explained this has been dismissed by my doctor and a previous neurologist, but he insisted I needed to be tested for it next.

He is recommending a blood test and the appropriate EMG. He said I'd not had the right EMG done, I needed to repetitive stimulation single fibre EMG. He also mentioned another test which is more precise (a need in the forearm or something?)

Feel both happy (someone has seen something I suspected, so I'm not going mad), and sad (hell, I might have MG). I guess on the whole its good as whatever I've got I've got and at least it looks like I'm going to be tested finally and not dismissed.

There's still a good chance its not MG but he seemed say it was definately worth eliminatinig with proper tests given my symptoms