Hi, I'm Sarah and I hav thoracic outlet syndrome.
About 6 months after a carpal tunnel surgery on my right wrist, I began to experience pain in the wrist but the doctors immediately scared me with a diagnosis of possible rsd. The pain and tingling spread into my hand and up to my shoulders. Within a year of the pain returning to my right wrist, both arms and hands were affected. Then, after the 4 gangliana nerve blocks failed, my doc says "I'm sorry, I just don't know what to do." Needless to say, I was very angry with doctors, I began to think I was crazy, and I wanted to give up.
I got a diagnosis in Nov. of '10 of bilateral TOS- Two and a half years after the symptoms began. In May, I got a left 1st rib resection, a pectoral minor reduction and a scalenectomy.
No real relief. The pt is increasing my strength but the pain just continues on.
Good luck to newcomers- just keep on.. its really difficult but worth it