That's nuts that they wouldn't give you more IVIG. Aseptic meningitis, unfortunately, is a fairly common and not dangerous side effect. I've had it at least four times. The first time was horrible, it was following my first transfusion which they did 5 days in a row and I spent 4 days inpatient wishing for a chainsaw to cut my head off.

The second time I went to the ER and got by on some IV Dilaudid and some pills they sent me home with.

The last couple times, I just laid in bed in fair agony and got by on pain meds. It comes with the territory for some of us. My neuro says, you're just going to get it from time to time. I have not had it or a headache since they lowered my IVIG dose.

Have them slow your infusion rate way down, take Benadryl and Tylenol round the clock for two days afterward, and hydrate before and after for two days. That's your best bet. For a while I got IV hydrocortisone before and after too, then just before, then not at all.