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Member
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Join Date: Apr 2009
Location: Tenn
Posts: 554
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Member
Join Date: Apr 2009
Location: Tenn
Posts: 554
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The tightrope
It just occurred to me -- it must sometimes seem like I (perhaps we?) give conflicting "signals" to newbies.
Sometimes, I tell newbies that MG isn't ALL that bad.
Sometimes, I tell newbies that MG is MUCH more serious than they realize.
So.........MG is a "tightrope".......a fine line between being nonchalant and being anxiety-ridden over our condition.
When I say that MG isn't all that bad, I am trying, in part, to get a "newbie" to calm down. Anxiety does us NO FAVORS! But, as I have ALSO said in other threads, I had rather have MG than cancer, ALS, Alzheimers, and quite a few other conditions. So, in my opinion, compared to some other things, "not so bad".
When I say that MG is serious, I am trying, usually, to get a "newbie" to realize that MG CAN knock you clear off of your feet. Thanks to "modern medicine", the mortality rate has gone down, but intubation is still a distinct possibility.
It is hard -- we can't be too indifferent -- or too uptight. Like Goldilocks and the Three Bears -- we have to find the bed and the porridge that is JUST RIGHT!
I don't know -- is this making any sense?
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~jana
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