Quote:
Originally Posted by Rrae
With all due respect, there are quite a few success stories on these units. There are plenty of RSD patients (including me) over on the SCS forum who have had great success and have achieved a much better quality of life because of the SCS.
I respect the fact that yes, there are failed surgeries and even spread of RSD.
However, I feel that when someone comes along asking about these they should get a fair shake and hear both sides - negative and positive.
There are a few others on that list, Ballerina, who would probably take issue. Some post regularly regarding their implants and are happy with them. Some of the names you've mentioned have had to have some adjustments made perhaps, but I feel you are jumping the gun by assuming they are failed cases.
Just my 2 cents.....feel free to tell me where i can stick my 2 cents 
Rae
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Hi,
I might add some comments to this discussion. Over a year ago while researching treatments for my daughter I came across this survey done
on a support site for RSD. Many questions were asked of RSD suffers,
concerning treatments, what did and did not work for them. Amoung the
questions asked was if any one tried the SCS and did it work for them.
Just today I tried to find that same survey and I will keep working to find
the results and post links if I am able to post links.
If memroy serves me many of the survey respondents said the unit helped for
about a year. However I am also assuming since those SCS were implanted
years before the survey was made that some of those units used were not
as advanced as some are today. I don't know.
I just noted on this same site an article by H. Hooshman, MD and Eric M. Phillips, neurogical assoiciates pain management Center. They say this.
"The following is a summary of our experience with treating complex regional
pain syndrome ( CRPS) patients who have undergone spinial cord stimulator
treatment for one year or longer." The success or failure of the treatment
with SCS depends on how early in the course of the illiness the SCS treatment started, and depends on the nature of the orginial nociceptive pain."
The article continues and can be accessed through RSDHope if I am permitted to provide that link.
As they say everyone is different so what may help one may not help another. Nevertheless traditional treatment usually lists a series of treatment each being more invasive than before so extreme caution must
be excercised
Food for thought
Joydee