One other thing I just thought of MSJanice12 was what my neuro doc suggested. She told me and another person with rsd that when our mouth pain gets bad to take a bit of brandy and swish it around in our mouth and spit it out. It deadens the pain quickly and allows you to fall asleep or rest without the pain for a bit anyway. Boy I thought it really would not work and I was surprised to find out it takes the pain away immediately!!! It just shows that sometimes the simple old-fashioned things work the best. Good luck and hope we can help you out.
kathy d