Hello everyone- Hoping you may be able to provide some support/resources as we begin my husbands journey with Paget Schroetters.

Last week he presented swelling, edema, and discoloration in his non-dominant arm. After a perfect MRI, and later a venogram, we had confirmed a fairly large subclavian blood clot.
After two days on heparin and TPA, we were able to eliminate the clot. His last day in the ICU showed a bit of residual left in the veins, but the doctors were optimistic that the combo of Lovenox and Coumadin would take care of this.
My husband is 31 years old, extremely athletic, and a firefighter. An avid weightlifter, my guess is that many years of lifting has contributed to this injury.
We live outside of Chicago, and would like to know if anyone has had experience with Dr. Liptay out of Rush, or Dr. Pearce out of Northwestern.
We will be seeking out their help as we make a decision about rib resection.

What have your experiences/recovery time been after the surgery?

As of today, his symptoms are making good progress. Coloring and edema in the arm and hand have greatly reduced. His hand has returned to normal size, and his upper arm is also showing progress....

We have received mixed advice about surgery- some saying this only returns in 1 out of 3 people, especially if he takes his weightlifting down a few notches. Others say do the surgery.... It's quite exhausting.

Any and all thoughts and suggestions are appreciated.