Before I had a diagnosis, I got to this point with my neurologist: he didn't know what was wrong with me, wasn't willing to give me experimental treatments without a diagnosis, and couldn't think of anything else to test me for. He was telling me to come back in six months--that was the extent of his "management" of my illness.

I thought, "This is it: I've reached the end of the road. I've gotten as much from the medical establishment as I'm going to get."

But I was wrong. I don't know if this is only my neurologist, or if it's typical, but since he couldn't do anything for me, he was more than happy to pass me off to another neurologist. It was in the best interests of both of us. He found me an ueber-expert in Boston, who diagnosed me.

Is there a chance you can get a new neurologist who isn't willing to just give up like that?

I'm so sorry for what you're going through.

Abby