I have not experienced the pill taking and burning pain but I do try to take as little med's as possible also. I just wanted to add to Kathy's comments about vitamins. I just recently and I mean recently, like 2 weeks ago started taking B12 daily, D3 weekly and just 2 days ago started taking Borage oil pill supplements. They are part of the Omega 6 family which we do not usually get enough of anyways. "They say" studies have shown it to help folks with arthritis, nerve damage and inflamation. It also has GLA in it Gamma Linoliec Acid which I think is the inflammatory reducer, not sure there. So for more natural ways to help the body, I am all for it, if later on I need pain med's then I will ask for them, but for now...I think I will keep trying this way, I am 41 years old.

I do take Topomax though but nothing else for the CRPS. I do have a tens unit and lidocaine patches and get nerve blocks every few months (which I am trying to taper off of also) I am also afraid that all of these things can cause spread or additional problems which I am not equipped to handle right now. Having CRPS in both hands/wrists is enough for me, especially with both thumbs being fused in the straight position.

Listen to your body and your mind. Do not let these doctors fear you into their beliefs. So what they never heard of that, it doesn't mean it can't happen. I always tell my Pain doctor "I am the exception to the rule, you cannot classify me with others." Insist on your treatment plan, choices and med's. I go to my doctors with my own research and information and tell her what I think I may want to try and we discuss it. She is impressed with my involvment in my treatment, although I think she gets mad sometimes because I don't agree with her all of the time and I speak my mind. WE have to look out for ourselves. Nobody else will. The doctors have a bottom line, making $$$$ and pushing certain medications for the pharmaceutical companies they are working with. Don't be afraid to speak up for yourself.

My Uncle in Florida just almost died because his doctor (old dr. now) had him on a wrong medication and nobody wanted to question anything...well my cousin flfew in from wherever, got a second opinion and my uncle came off the medication and out of hospice 2 days later....He would have died. He was in hospice being tube fed and on morphine waiting to die all because of a medication.