Originally Posted by alyson.lane

Hi
i was firstly diagnosed in 1988 with crps in both knees after having surgery, was virtually told to go home and not move and that i would be in a wheel chair by the time i was 21 years old, being told that when i was 19 was very scary and have actually never been in a wheelchair. On really bad days, weeks. I just rest.

then in 1998 i started having severe stomach pain and constipation and was in and out of hospital every couple of weeks eventually they removed my appendix but that didn't cure the pain. Then i just managed and thinking about it the pain in my knees also calmed dawn a bit.

when about 8 years ago the pain returned and more severe than before, have has every test imaginable done but always comes back neg apart from Thyroid problems and that's not normal i have a low T4 where mostly people have a low TSH. The constipation was really bad too and now i have a pec in my Cecum, i daily have to insert catheter in to pec then wash it out then twice a week i put an enema in and that's the only way that i go to the toilet.

I am very depressed at the moment as i cant see away though this awful pain which seems to be everywhere wrists fingers legs (sometime it feels like my legs are not part of my body) back neck. i usually can snap out of it but this time i cant and im really concerned.