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Grand Magnate
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Grand Magnate
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Hello Slyons
Welcome to NT!
I'm so glad you've found us! 
I can sure understand the feeling of being passed around and not getting any clear answers. I know this is easier said than done, but try not to let your mind wander to the unknown. I'm sure your Dr is just wanting to get you under the care of someone who knows alot about this, so you can get the best care possible.
Jo*mar has given you the link to the CSF leak forum. You can get a good idea of things to expect and the folks there will help ease your mind.
I know you must be very frightened. Take comfort in knowing that you are not alone and things will begin to unfold for you.
Caring,
Rae
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