Thread: Missed you all..my update
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Old 01-17-2012, 12:30 PM
JB63 JB63 is offline
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Join Date: Jun 2011
Location: NY
Posts: 141
10 yr Member
JB63 JB63 is offline
Member
 
Join Date: Jun 2011
Location: NY
Posts: 141
10 yr Member
Default en bloc
Quote:
Originally Posted by en bloc View Post
You might also look to see if they ran an aCL (anticardiolipins) to see if you have APS (antiphospholipid syndrome). It's an autoimmune clotting disorder that could explain your hypercoagulated state.

I don't think there is anything that Sjogren's doesn't attack. I have ganglionitis/ganglioneuropathy from Sjogren's as well as numerous other areas & organs that have been effected. Sjogren's can be far more complex then many (even doctors) realize.

Maybe they will reconsider the IVIG after seeing the results of your nerve/muscle biopsy.

Best of luck with the biopsies. Please keep us posted.
The aCL's were negative, but my hemo repeated them. The conclusion was "The presence of a Lupus inhibitor can't be excluded and suggest repeat evaluation when effects of warfarin are not present.

My drVVT and anti beta glycoprotein1 Iga and factor VIII were elevated.
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