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Originally Posted by mrsD
I believe motor loss is significant and needs immediate medical intervention. Motor loss occurs with some autoimmune types of PN, and severe types like GBS. IVIG and immune suppressing treatments typically are used. I know someone who had severe GBS and had plasmapheresis to remove the attacking antibodies.
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You know how you've said in the past that food allergies can cause burning sensations?
I've found a local naturopath whose schedule isn't extreme and who does a lot of testing. She uses a lab that makes the following comment:
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Leaky Gut Syndrome
An overload of antibody-allergen complexes can cause inflammation in the lining of the gut, and this inflammation causes the gut to "leak.” The leaky gut then allows more antibody-allergen complexes to escape into tissues, which provokes more food allergies. Therefore, anyone with leaky gut should be tested for food allergies and anyone with significant food allergies may need to be treated for leaky gut.
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Does that sound reasonable?
I stopped eating foods to which tests showed I was allergic, but if my gut was leaking, I could now have new food allergies?
I know that my gut wasn't in the best condition when the last tests were done. I made some progress a few months afterwards when I drank a little magnesium chloride with water. (I didn't have another loose stool for six months.) However, I can't know if it solved any and all possible leaking gut issues.
I seem to have progressive inflammation. I don't know what is causing it. It's not causing redness or swelling, just heat. It may be some kind of vasoconstriction and/or ATP deficiency leading to failed sweating. The heat gets trapped. It's too permanent it seems to be a food-related flush attempt or a hormonal-related 'hot flash.'
Maybe it's some kind of glucose problem (related to food). The skin needs glucose to get heat, right? The nerves aren't coming up with the energy to get high heat.
A book on Chronic Fatigue Syndrome (CFS) has an interesting section on
trapped heat:
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This refers specifically to the imbalances that occur when a viral or bacterial infection invades the body and is not fully resolved. This can occur when the patient’s defenses are compromised due to stress or lack of rest. If the pathogen is not expelled, this in turn can further weaken the body’s defense system. In this case, the result is often a type of trapped heat (inflammation) that becomes aggravated whenever the patient becomes run-down or experiences a lot of stress. Pain in this case is often of a burning nature. Other accompanying symptoms include fever (especially at night), frequent sore throats, mouth sores, a burning sensation on the skin, insomnia, restlessness, fatigue, and irritability. Treatment is aimed at cooling the body using [acupuncture] points that specifically clear heat and restoring the flow of chi and vital substances in the affected meridians.
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What do you know about acupuncture and peripheral neuropathy/trapped heat? The last thing anyone with PN that causes burning sensation on its own needs is trapped heat right next to/direct on those nerves. Which is what I think I may have. It seems my nerves are getting friend by the trapped heat.
A site on acupuncture says:
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An unprocessed, easily digestible diet low in dairy, wheat, and fried foods will keep the body clean and balanced with efficient heat-removal processes.
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I don't eat dairy, wheat, or fried foods.