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Old 01-17-2012, 05:43 PM
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
GrannyJo4 GrannyJo4 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 35
10 yr Member
Default My 2nd opinion with the M.G. specialist Yuk!

The more I try to find the answer to why I still can't swallow, the more I get confused by what the Doctors find on tests and what the tests mean!

I have M.S. and M.G. at least thats what I was dx. with over 22 years ago for the M.S. and 7 for the M.G..

My Neuro said he dosen't think the M.G. is the cause of the swallowing going bad. It started in April and after 2 rescure of I.V.I.G. I was getting worse not better so he put me in the hospital for 4 day high dose of more I.V.I.G., I got even more weaker and so they put in a peg feeding tube and told me I'll feel stonger in a few weeks. I did start feeling stonger after a month but NOT my swallowing, that got worse where now I can't swallow my saliva.

The Stange part is I can swallow when I go into a sleep state. Thank God!

The 2nd opinion Dr. M.G. specialist said I am to strong ( MG wise)to have such a servere swallowing problem that I'd need a feeding tube.

When I asked her what she thought it could be, she said she dosen't know and it's not her job to try and figure it out. She said she was asked by my Doc. to see if the M.G. is whats causing the swallowing problem, period. It will be up to my Neuro to do more testing to find out.

They did a neurolgy test on me, and I hope you don't mind if I list some of the things they found and hope someone can tell me what it all means.

Reflexes: Reflexes: 2+ at bilateral biceps, brachioradials, and knees. Trace a bilateral ankles. Downgoing toes.

Functional Gait : Normal gait. Unable to walk on heels or toes. Tandem unsteady. Romberg positice.

On neurologic examination and electrodiagnostic testing, we found evidence of a sensorimoter polyneuropathy of unclear etiology.
We will defer further workup of her neuropathy to her primary neurologest although we do not think this is directly related to her dysphagia.

Her dysphagia is of unclear etiology at this point, but we do not believe it is related to myastenia gravis or her neuropathy. Further evaluation and interventions with a speech therapist may be warranted to investigate a central cause (MS)


I had told her I went for the bariam swallow and ended up choking on the first drink.
I tryed another drink and the tec. asked me to push the drink to the back of my throat which I did, but again I could not swallow it. so it started running down the back of my throat and there was no gag reflex or normal reflex to catch the drink so the Tec said to try and cough it up. She said the test was over and if it is a pyhosamatic problem she never seen one so servere.

I already had 3 months of Vital Stem speech therapist treatment with no improvement, this was before even going to the 2nd opinion.


O.K. Sorry this is so long, but does anyone know if sensorimotor polyneuropathy has anything to do with M.S.? .....and could that have anything to do with my swallowing or lack of it?

Thank you for taking the time to even read this long post,
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