Thank you again for more postings! By the way, I mentioned before that I started on neurontin 9 days ago for the pain in my mouth and the pain that I've been having in my shoulder blades, neck and head has decreased significantly ... so maybe that pain IS related to my RSD? In my first posting I said I didn't think it was ... but now I do think so. The pain in my lower back hasn't changed since I started on the neurontin but I know that I have arthritis in the back so it probably wouldn't help that? I'll be in touch ... this is the only support group that has interacted with me on my postings ... since I'm retired ... I don't get on the computer every day but will still check in often.
Regarding having RSD in the eyes ... wow, if it took me almost 7 years to get to the bottom of my dental/gum pain ... I definitely can imagine what you must have gone through to get someone to listen to you! And if you've had RSD for 17 years, I can also imagine what you've gone through.